OUR PLACE AT THE FOREFRONT
A place for patients by patients, our aim is to connect our global community affected by Von Willebrand Disease. Being the largest portion (majority) of the bleeding disorder community our current presence is comparatively silent.
CLEARING UP THE FACTS
Working toward breaking all the stereotypes and myths about von Willebrand Disease to ensure that we are taken seriously; all the way from mild through to severe types. We all deserve equal access to a quality of life.
NO BLEEDER LEFT BEHIND
There are millions of us around the world, and although a large portion of us are 'thought to be' relatively mild we will allow the patients to speak the statistics for themselves as we engage and unite to better understand who we are as a community.
We endeavour to be known as well as the other equally occurring conditions better known and understood amongst general/primary practitioners all the way through to education systems.