CLOSE THE GAP
WHY HAVE I NEVER HEARD OF THIS CONDITION?
A serious lack of education and awareness!
It’s estimated to affect 1% of the world population.
90% of these patients have still gone undiagnosed.
Can you help us?
Von Willebrand Disease will be celebrated across the globe every 1st of February, launching from 2020.
Leading up to this day you can make inquiries or register interests to get involved or make contributions to this community.
We have an GoFundMe campaign here!
So what is the condition?
Von Willebrand Disease is the most common bleeding disorder in the world. It is an inherited genetic disorder caused by a missing or defective clotting protein in the blood called von Willebrand factor. It is occasionally acquired from other illnesses and medications associate with cancer and autoimmune.
Von Willebrand Factor binds with other components in your blood to form a plug during the clotting process when bleeding is present in the body. If your Von Willebrand Factor is defective or your levels are low; it causes excessive bleeding, poor quality of life and can potentially be life-threatening in any severity type depending on the situation of the bleeding. Symptoms vary in patients and can include: blood in the urine and stools, easy bruising, excessive bleeding during childbirth, heavy or prolonged periods, gum bleeding, nose bleeds, other organs bleeding, soft tissue & joint swelling and pain. Patients with moderate to severe forms can bleed spontaneously with no trauma.
The name of this condition comes from Doctor Erik Adolf Von Willebrand and the word Disease means it consists of a disorder of a structure or function in the human body. It has previously been referred to in history as Angiohaemophilia, Vascular Haemophilia, and Pseudohaemophilia.
Keep on reading to help us celebrate - if you may suspect that your or someone you know to be living with this condition reach out here.
Project Von Willebrand
Moana Hall - Perth, Australia
This event will accept submissions from all artists, health professionals and patients globally in any medium.
Please be aware due to the Australian bushfire disasters this will be a soft opening later in the year ro be advised and we will be primarily fundraising on GoFundMe.
The funds will be used to donate educational materials to bleeding disorder organisations and schools around the world!
If you are a school or organisation who would like to register or you would like to nominate your school - do so below.
REGISTER YOUR INTERESTS